Teachers of CHD Students Beware

I have to say that I am overly paranoid, but prepared when my daughter starts a new school year. Before the school year starts the teacher will always call to introduce herself and I always push my husband out of the way so I can give her the 4-1-1 of the history of my child. I also make sure to send her and the nurse a detailed email regarding her medical history and I ask her teachers to also inform every teacher that comes in contact with her. Yep, call me paranoid and really overprotective, … [Read more...]

My Baby Turns From a Blue Baby to a Pink Baby

August 31, 2005 was one of the longest days in my lifetime. This was the day that our Lexi would be having her heart repaired. Knowing that it was going to be a long day and knowing that I would not remember any of this day, I decided to take a journal with me to the hospital and document every moment of Lexi's heart journey. (SN- If your child is having surgery, I recommend writing in a journal as the surgery is taking place) I am so thankful that I did. Lexi's journey began at 5am when we … [Read more...]

What to Pack for Unexpected Hospital Stays

This post contains affiliate links. See the full disclosure here.  When my daughter Alexis was born, she was diagnosed with Tetralogy of Fallot, a congenital heart defect. After she was born, I knew that we would find ourselves having to stay overnight at the hospital, but sadly I didn't realize how many overnight hospital stays that we would end up having.  The first overnight stay was miserable for our daughter and for us. The hospital stay was unexpected and we had to pack our … [Read more...]

Did Someone Just Punch Me In My Gut

On this day I was getting a sonogram. I have to say that the best baby doctor visits are when you get to see your baby! As the sonographer rolled the mouse like contraption on my stomach, my husband and I looked at our baby girl with such a delight. She was the cutest little bug we had ever seen! She pointed out her little fingers and toes and told us her measurements and her predicted weight. As she was moving the contraption my husband and I were just chatting amongst ourselves when we noticed … [Read more...]