It’s Not Always Rainbows and Butterflies

Like most moms, I like to post the really cute pictures of my girls. The pictures with them smiling ear to ear or pictures of them sleeping quietly having fallen asleep after a long day. I also like to post really cute videos of my girls saying silly things or doing something really talented; like this for example:       or this: or this:                                     It's funny because I see other moms post the cutest pictures of their kids and post adorable videos as well. … [Read more...]

The Birth of my Sweet Lexi

Since my child decided to stop growing, my doctor decided that we might as well deliver her into this world a few weeks early so she would have a better opportunity to grow and get big. Here is the story of the birth of my sweet Lexi.  When you are prepping to deliver a baby that has any type of 'special needs' or 'abnormal issues' the delivery room gets really crowded with extra nurses, specialists, and NICU staff. I was amazed at how many people came to see me have a baby! It was … [Read more...]

Teachers of CHD Students Beware

I have to say that I am overly paranoid, but prepared when my daughter starts a new school year. Before the school year starts the teacher will always call to introduce herself and I always push my husband out of the way so I can give her the 4-1-1 of the history of my child. I also make sure to send her and the nurse a detailed email regarding her medical history and I ask her teachers to also inform every teacher that comes in contact with her. Yep, call me paranoid and really overprotective, … [Read more...]

My Baby Turns From a Blue Baby to a Pink Baby

August 31, 2005 was one of the longest days in my lifetime. This was the day that our Lexi would be having her heart repaired. Knowing that it was going to be a long day and knowing that I would not remember any of this day, I decided to take a journal with me to the hospital and document every moment of Lexi's heart journey. (SN- If your child is having surgery, I recommend writing in a journal as the surgery is taking place) I am so thankful that I did. Lexi's journey began at 5am when we … [Read more...]